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Rx List: The Internet Drug Index:
Features search for drug
name to provide information on that drug. Or browse the list of
most-prescribed drugs. Includes information on side effects, interactions,
dosage and usage.
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University of Wisconsin - Madison: Family Village:
Global community integrating information, resources and communication
opportunities on the Internet for persons with cognitive disabilities,
their families and support providers. Links to many resources including
message boards, library, shopping mall and medical information.
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MedicAlert in Canada:
Leading
provider of medical information services linked to customized medical
bracelets and necklets.
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Canadian Institute for Health Information:
Independent
pan-Canadian not-for-profit organization working to improve the health of
Canadians and the health care system by providing quality, reliable and
timely health information.
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Canadian Institutes of Health Research:
Canada’s
major federal funding agency for health research, with an objective to
excel in the creation of new knowledge and its translation into improved
health for Canadians and an improved health care system.
-
Government of Canada: Health Canada:
Provides
national leadership to develop health policy, enforce health regulations,
promote disease prevention and enhance healthy living for all Canadians.
-
Government of Canada: Health Canada: Family Violence and People with a
Mental Handicap: (pdf document)
Defines family
violence, particularly as it pertains to individuals with a mental
handicap.
-
Government of Canada: Health Canada: Canadian Health Network:
CHN’s
mission is to support Canadians in making informed choices about their
health by providing access to multiple sources of credible and practical
e-health information.
-
Government of Canada: Health Canada: Canadian Health Network: People with
Disabilities:
Provides resources for and about
people of all ages with physical or cognitive disabilities.
DIRECTORIES
GENERAL HEALTH
PUBLICATIONS
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EnableLink:
Offers resources for
information, research, entertainment and life skills for people with
disabilities. Internet home site for Abilities magazine, Canada’s
foremost cross-disability lifestyle magazine.
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Woodbine House:
Publishers of books about special needs. Available-for-purchase books
cover a wide spectrum of related topics.
-
AAMR: Disability BooksOnline:
Compendium
of books, both electronic format and print, available for purchase. Topics
relate to developmental disabilities and are published by AAMR Publishing.
-
Disability Solutions:
Newsletter
resource for families and those interested in Down syndrome and related
disabilities. Print and email subscriptions are available free of charge
for those with a U.S. postal address. Outside the U.S., access to the
online version is available free of charge three weeks after publication.
-
Down Syndrome Quarterly:
Includes
current research information, healthcare topics, editorial and commentary,
and book reviews. Paid subscription required.
-
Special Child Magazine:
Online magazine for parents
and caregivers of children with special needs.
CONDITIONS
AUTISM
-
Geneva Centre for Autism:
Leading source of training, resources and support for individuals with
Autism and Pervasive Development Disorder (PDD) and their communities.
-
Autism Society of America:
Promoting
lifelong access and opportunity for all individuals and their families
within the autism spectrum. Focus on providing information and education
to help in decision-making through education, advocacy, public awareness
and the promotion of research.
-
Centre for the Study of Autism:
Provides
information to parents and professionals about autism and conducts
research into the efficacy of various therapeutic interventions. Based in
Portland, Oregon.
-
Autism Research Institute:
Non-profit organization
devoted to conducting research on the causes of autism, and on methods of
preventing, diagnosing and treating autism.
DOWN SYNDROME
-
Down Syndrome Research Foundation:
Based in the U.K., but reaching across Canada through the
Internet, The DSRF has a mandate to empower people with Down Syndrome to
achieve their potential, lead independent and fulfilled lives and
participate fully in the communities in which they live.
-
Canadian Down Syndrome Society (CDSS):
Mission
is to enhance the quality of life for all individuals with Down syndrome
through information provision and assistance, networking opportunities for
parents and professionals and advocacy in the areas of education,
employment and health care.
-
National Down Syndrome Congress:
Mission
is to be the national advocacy organization for Down syndrome in the U.S.,
and functions as a major source of support and empowerment to persons with
Down syndrome and their families.
-
National Down Syndrome Society:
Based
in New York City, the NDSS envisions a world where every person with Down
syndrome has the opportunity to realise their life aspirations and has a
focus on education, research and advocacy.
-
Down Syndrome WWW Page:
Established
in 1995 when the Internet was in its infancy, this page is still compiled
from the contributions of members of the Down Syndrome Listserv and
others. Links to a wide variety of information relating to Down syndrome.
-
Riverbend Down Syndrome Parent Support Group:
Includes current
research information, healthcare topics, editorial and commentary, and
book reviews. Courtesy of the non-profit Riverbend Down Syndrome Parent Support Group.
EPILEPSY
-
Epilepsy
Ontario:
Information about
epilepsy, including seizures, medications, first aid, and a resource centre. Additional internet
links are also provided.
-
Edmonton Epilepsy Association:
Objective is to
promote an improved quality of life for people with epilepsy, through
programs that include assistance and support, education, fund raising,
recreation and research.
FRAGILE X SYNDROME
-
National Fragile X Foundation:
Unites
the Fragile X community while enriching lives through educational and
emotional support. Working to advance research toward improved treatments
and a cure for fragile X syndrome.
-
Conquer Fragile X Foundation:
Information
about fragile X with a focus on the development of effective treatments.
-
FRAXA Research Foundation:
Supporting
scientific research aimed at finding a treatment and cure for fragile X
syndrome. Provides grants to universities worldwide.
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